I’ve been living so long with my pictures of you

IMG_5878I have become smitten by Instagram and this is excellent, because Words with Friends, this blahg, and conducting entire relationships via text are not enough distraction from the work I’d like to be doing.

The Instagram thing is great though because I used to love taking photos and, if I may be so bold, I was pretty decent at it. In the pre-digital era, which lasted a mere four-and-a-half billion years or so, I would shoot rolls and rolls of film when I attended events or take photos of rooftops in New Orleans and people walking away in various places, old men playing chess in Chinatown (that one didn’t go over very well; live and learn).

It’s a full moon tonight – fantastic – maybe things will finally start to get strange!

This new “strange” is, as they say, my “new normal” – I don’t like that expression – it’s my new reality and I’m learning to deal with it bit by bit and moment by moment. One of the things that helps the most is conversation – face to face conversation with people, friends and even the occasional stranger, who speak some of the same dialect that I do. The dialect about love and understanding and the validation of feelings and how, no matter how hard we might pretend we don’t need those things, those are ultimately the things that most of us need. We learn to live without them and so we grow up with these ideas that soul love is a fantasy, that our feelings are disproportionate (not our responses, for those certainly can be disproportionate, but our feelings themselves are 100% as they are meant to be), and that no one will ever really get us, because we’re simply too hard to get.

None of this is true. And trying to inure ourselves to the pain and struggle of finding these vital human needs only prolongs the process – be it through booze or drugs or meaningless sex, shopping or bingeing or hoarding cats – whatever it is, when we do the things we do to numb ourselves to our authenticity, we stifle that authenticity. Getting it all out can be terribly, frighteningly painful, but the better we equip ourselves to do so, the sooner we will become the people we actually are. Not the ones that hide behind vices and defenses and decades’-old betrayal, the ones who’ve experienced all the ups and downs and sideways and have the tremendous potential to thrive. From this point forward. The past is over, the present is now. And in coming to terms with this, one no longer needs to search everywhere for conversation about love and life. Conversation is a brilliant device that needn’t always be so heavy. I believe that getting through the heavy stuff with an intention of patience and kindness will expedite the process whereby one can get back to discussing the light stuff, the stuff that makes this world the beautiful shimmering light that it is.

I bought paint today. More paint. I’m going to try to keep painting pictures that are supposed to be representational and are abstract at best, filthy palates at worst. Either way, it’s an interesting outlet.

Have you seen the movie “Let the Right One In”? It’s a Swedish film about vampires, the theme of which is that, as all vampire mavens know, a vampire can not enter your house (or chateau or turret) unless you explicitly invite him/her in. Louie and I have developed a new routine whereby I have to invite him out of the house when we go on walks. I leash him, I sing our little walk song, and I stand outside the door waiting for him to exit. Let the Right One Out. The Louie Story.

Bright blessed days … dark sacred nights

ImageApologies to my friends who saw me not at my best last night. To accept me is to understand my imperfections and, more importantly, my core, which is one of love and generosity and authenticity. However, yesterday was a day dominated by fear, and as such I probably needed more comfort and nurturing than being in this city sometimes allows. I love this city, but at times I wish I could instantly transport myself to the little patch of rocky beach in Maine that I love so much. Yesterday was one of those days.

I’m finally reading Wild by Cheryl Strayed, inspired by the fact that an old friend and novelist compared my writing to hers. Very different subject matter, but I’m flattered and I see where she’s coming from. It makes me want to keep writing so that I can keep getting better.

This is what Strayed says about fear:

Fear, to a great extent, is born of a story we tell ourselves, and so I chose to tell myself a different story from the one women are told. I decided I was safe. I was strong. I was brave. Nothing could vanquish me. Insisting on this story was a form of mind control, but for the most part, it worked. Every time I heard a sound of unknown origin or felt something horrible cohering in my imagination, I pushed it away. I simply did not let myself become afraid. Fear begets fear. Power begets power. And it wasn’t long before I actually wasn’t afraid.

I read this before my appointment yesterday and tried to channel it as best I could. I had a bit of a meltdown after getting ready too early and waiting at my house to leave, and a slight one on the way over, but by the time I reached the hospital, where my mom was waiting for me (at her insistence; I accompanied her to her surgeries a couple of years ago. We’re both pretty good with other peoples’ crises), I was calm enough. It turned out I was not having the MRI I thought I was having; miscommunication from the person who booked the appointment; human error is unavoidable. Instead I had a consultation with a neurologist who went over my recent CAT scan with me. The MRI is pending approval from my ever-lovely and generous insurance company.

I’d had a CAT scan following a week-long fever and persistent headaches – headaches that lasted after the fever went away. I just had deja-vu. Turns out that the fever was a virus, but the CAT scan revealed something called ventriculomeglia (Jojo, is that right?) which means that part of me brain is larger than it should be for a person my age. It’s not extreme, but it is there – he showed me the CAT scan, which was fascinating and weird and my eyeballs looked quite round. And brains are gray. When a baby or young child has this condition it’s “water on the brain”; in an adult (maturity level notwithstanding), the causes can be many. Most extreme case is cancer. It’s possible I’ve always had this; I have to call the hospital where I was taken after my accident to see if they can send the records from that CAT scan. I assume I had one back then but honestly, it’s all a bit foggy. The neurologist said, “I don’t think we need to go in and perform surgery; I think we can continue to monitor this.” He gave me a battery of tests, which I passed. Next step is to have the MRI, see him again, and then make yearly visits with him.

This is all a huge relief, of course, and I know people have weathered far greater health concerns than this. However, this is scary for me. Yes, I can keep it in perspective but it is all relative. A few years ago I had tests on my heart. When it comes to the heart and the brain, regardless of outcome, the stakes are such that fear is a natural response. There’s been strange cancer in my family. One never knows.

As I said in the post I referenced above, I went about 40 years without surgery or a concussion – and then had three surgeries and a concussion in the course of a year. I’ve had lots of surgical procedures, have had every dental woe known to (wo)mankind (root canals, caps, crowns, the removal of four impacted wisdom teeth followed by complications I won’t name because my dear friend is getting his wisdom removed tomorrow but suffice it to say, mine was an extremely rare scenario), and have sprained and broken digits and appendages, but now we’re getting to the organs and it feels like a different animal.

Regardless, I am alive and I am going to have all the tests I need to have and I am in good medical hands and so we move forward. Like a shark. But where mortality and my mother and my emotions meet, things can get very murky. And so yesterday was an intense one for me, and I suppose I should have predicted that and planned accordingly. But I didn’t.

I love you, friends.

Health is important, which is something I’ve lost sight of at times. Never again – I’m keeping on top of things. I was very proud to say “no” when they asked if I smoked or took recreational drugs. Progress should be celebrated; perfection is a myth.

Let’s reboot.

It’s only love, and that is all

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Alors. Right this moment I am feeling blissfully back on track following a week of derailment. I don’t often get sick (knock on wood, bad rice, etcetera) and I spent five days in bed with a fever and no appetite. Doctor ordered a CAT scan, all is fine, I’m better, but oy vey that was a rough one. And one that separated the wheat from the chaff, as traumas great and small always do. Thanks, you, for dog walks and beverages and making me eat and hanging out watching Le Mans whilst I wept on my fainting couch and all good things. And I can handle the bad things. I’ve told you this repeatedly and now I’m putting it in writing for my legions of readers (hello, you three) to note. So here it is, my pledge, I will weather the storms with you as you have and will with me and you’re stuck with me as your friend, manager, editrix, and Jewish grandmother. Put some sunscreen under that bike helmet.

Back in the music and art zone, which is where I need to be, always. Galleries Thursday eve, music last night, accompanied friend on photo shoots of the Empire State Building and the nether regions of Staten Island (beautiful [free] ferry rides there and back), and inadvertently bore witness to what could easily have been a reality show about horrid, coked up frat fellows and the wedge-heeled girls who love them on Friday night. From a safe distance. Keep your friends close and your amateur-hour-look-ma-no-hands-coke-binge-Skoal-packing dew schbags far, far away.

Happy Gay Pride to those who celebrate, embrace, and understand. If you don’t, please feel free to never read another word I write.

It’s a new dawn.

Across these purple fields

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When I reached the corner of 41st and Madison today, I saw a woman sitting in the street; she’d just been hit by a car, it seemed. She had her back to me and an umbrella over her head – it’s pouring rain in New York – so I couldn’t really see what she looked like. Her legs were crossed strangely and she was just sitting there, while strangers gathered around, talking to her and directing traffic. I was on a phone call and outside my destination, so I couldn’t really avoid the scene; it was incredibly upsetting. The vulnerability on display, the kindness of strangers – sometimes I feel too emotional for this world. Soon a firetruck arrived, followed by an ambulance, and after what seemed an exceedingly long time, they took her away. 

What made this especially strange was that I was already planning to write about what happened to me exactly two years ago today. 

In the winter of 2011 I fractured a tiny bone in my wrist – my scaphoid. I didn’t realize it for six weeks, six weeks during which I banged out a draft of a screenplay and downward dogged on a regular basis – something I doubt I’ll ever be able to do again. I wound up in a cast for a year – a series of casts, actually, as I had three surgeries on my wrist during that time. 

On June 7 I had my first (and, as it turned out, last) day of a class in midtown. I had an afternoon appointment with my wrist surgeon and in between I ate lunch in Bryant Park. It was the first hot day of the season – incredibly hot, and humid. I had enough time to walk to my appointment, so I began to head uptown after lunch. On the corner of 52nd and 5th I started to feel lightheaded. The subway was across the street and I decided to take it, but by divine intervention I didn’t make it. Instead, lights started flashing in my eyes and I realized something was not right at all. The last thing I recall is turning around, seeing a store and heading toward it to sit in the air conditioning. 

I came to surrounded by people I didn’t know; one person was behind me holding my head, someone was offering me water, someone else said, “You’re okay – you fainted but the ambulance is on its way.” I told them I had to get to my appointment and tried to get up, but they wouldn’t let me. I looked over at my purse and saw a puddle of what looked like Kool-Aid; when I asked what it was the person holding my head said, “We spilled something – don’t worry about it.”

This is hard to write.

This is what happened, I found out a few days later: some of the shop’s employees came back from lunch and found me standing in the doorway to the office, which was next door. Apparently I grabbed one of them by the arm and told him I didn’t feel well, and he told me to come in and sit down. He put his key in the door and I fell backwards through it. They stared at me for a second and blood started to pool around me. One of the guys who worked there was certified in CPR; he’s the one who was behind me with the compress on my head. I was out for a little over four minutes and it took the ambulance 15 to arrive. 

I remember the rest. The paramedics strapped me into the thing-they-strap-you-into and lifted me in. I asked them if I was going to die. They asked me all my pertinent info and compared it to my driver’s license. They asked me the date, the name of the President, and his predecessor; I made some sort of political joke because I was desperate to prove to the universe that I was okay and going to make it. 

My parents were flying back from France that night, so wouldn’t find out about this until the morning. My then-boyfriend came down to the hospital, though it was a while before he could see me. 

Once it was established that I was stable, I spent hours on a gurney in the hallway of Bellevue being hip checked by whomever passed by. At one point they wheeled me outside of an x ray room; a patient they were examining inside the room went into cardiac arrest and died. I heard them yell “Code Blue!” and a dozen people rushed past me into the room. I heard him flatline. 

Because it was a head injury, I spent the night in a room that had 24-hour supervision. My roommates were three men: one was a prisoner, handcuffed to his bed, with an attending cop stationed outside; one was a grandfatherly Latino on oxygen who kept asking for cigarettes and giving me sympathetic looks – he was very protective of me; the third was Mr. Singh, a Sikh who was yelling obscenities in Hindi all night long. He and I were separated by a curtain and the nurses kept shouting things like, “Mr. Singh, put your pants back on!” “Mr. Singh – that is NOT a bathroom!” I was on a Valium drip – Gawd I love those – and they kept upping the dose because having Mr. Singh as a roommate is not conducive to rest. 

One of the doctors who saw me was a young, cocky resident who was chomping on gum and trying to get me to confess to a drug habit that I did not have. 

The upshot of all this – a concussion and several staples in my head. The cut itself was fairly shallow. I had serious short term memory loss in the weeks that followed; as it turns out, the part of the brain that I injured is the part associated with communication and language. I forgot words. I forgot close friends’ names. I forgot who visited me and when. I couldn’t walk down the street by myself for many weeks. 

I sent this note around at the end of July:

Individual thank you calls forthcoming, but collective profound appreciation to all of my friends and family who’ve been so lovely and supportive in the aftermath of my accident. Feeling so much better in every way – and you were all absolutely wonderful during my time of many needs. Special thank you to Claudia , Mo and KJ for accompanying me to doctors’ appointments and acting as my short-term memory/balance when I had neither, and to Angel, Alyssa, Di, Erika, Sean, Suzanne, Vanessa, Christina, Linda, Tommy, Rachel, Cheech, Sherrie, Paul, and the folks I’m inevitably forgetting for visiting. Thank you always to Tara and Lisa for listening so well and so patiently.

I have the best friends in the universe. Truly. xoL

Wow. I’m glad I got this out. I really, really hope that the woman I saw today is okay, and that she has the guardian angels on her side that I did that day and still do. 

Love is the drug

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The other day, I felt the blues trying to sneak up on me at a most inconvenient time. I was on my way to see my mom — we went to the ballet — and I am trying my best to minimize her worrying about me. A friend who understands these things all too well (I wish you didn’t, of course, but selfishly, it helps that you do) agreed that I should “fake it” — because sometimes this actually works. I did; I smiled throughout the cab ride uptown in what I hoped was a beatific manner but that was probably closer to maniacal. I held the door for everyone in my path at Lincoln Center. I rolled my eyes and agreed with the line for the Ladies Room that waiting so long is an injustice against our gender. And by the time I saw my mom, I was feeling much better.

Since I’ve been writing about depression I’ve been searching for my own metaphor. It’s something like a fog coming in (and not, as Carl Sandburg said, on little cat feet), but fog is too pure; it’s more like a thick smog. The ability to sense its coming is invaluable. 

Grief is an entirely different animal. When I was little my mother and sister were driving in a rain storm and a massive dead branch fell on their car and shattered their windshield; thank God, they escaped unharmed. That is a good analogy for grief — a wet broken branch that falls with a thud and shatters whatever it lands upon. And grief, again, takes many forms — death of a loved one is the most profound, but the loss of any relationship can be as traumatic, particularly when it takes us by surprise. So, “At least you’ve still got your health. At least no one died” doesn’t apply; every ending is a death of sorts. Folks-who-are-going-through-this, allow yourselves to grieve and don’t let anyone make you feel that you should snap out of it, because we can’t just do that; adding pressure to the feeling makes it that much worse. Change of any sort is difficult, and it makes perfect sense that we struggle with it, that the unexpected takes its toll and we are temporarily paralyzed by the fear that we’re not sure how to get through, what to think, how to feel, how life can possibly work from here on out. You ARE going to get through it, and you’ll figure out how life is going to work, but these feelings are entirely valid. Rely on friends, rely on music, on art, on exercise, allow yourself to feel the loss and allow yourself to believe that you have incredible strength that will rise to the surface when you need it most. 

The Vanishing Man contacted me again, via email. I’ve still yet to respond to a single attempt on his part. I’ve nothing to say. I wish I didn’t derive any semblance of satisfaction from his “suffering” (hard to believe the words of the delusional), but I can’t help it. I went through hell — briefly — because of him (in part because of him; he doesn’t have the power to wreck me), and I made my feelings known to no avail. I’m pretty sure what I feel now is indifference. Of course I don’t wish ill on him — I wish no one physical harm, ever — but if he’s now having a hard time emotionally because of the world he created through his action and inaction, so be it. Not my fault. Not my problem.

I’ve come to the point where I truly believe that, more often than not, we’re best off making our thoughts and feelings as clear as we can; any “rejection” this causes is much purer and less worrisome than what would exist if we hadn’t put ourselves out there in the first place. If our genuine selves send others away, those others could never have been right for us. Because despite our best intentions, despite how hard we try to be on perfect behavior at the beginning of a relationship, to woo through what we think will work and act in such a way that we will keep the object of our affection interested, eventually our true selves will shine through. I think I’d rather be rejected for who I am, hard as that can be, than for who I want others to think I am, for not expressing enough interest if I have it, for not putting my heart out there. At least then I know I’ve done whatever I could to love completely and without subterfuge. It’s important, however, that we don’t make the loneliness = heartache mistake. That we don’t perceive promise where there’s never been any and let this determine our happiness or sense of selves. No one person can make it all better for us. Sometimes not crossing the line of platonic love in the first place is the best thing we can do. This is not the same as acting on physical impulse once (or twice) and realizing it’s a mistake, because as sentient and sensitive beings, sometimes in-the-moment makes all the sense we need it to. But regaining our wits if we haven’t succeeded in keeping them about us is crucial. And not blaming others for our indiscretions or changes of heart (or other parts) is mature and kind. Much more to say but I’ll have to come back to it.

Yes it’s a long way to go, but in the meantime

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A friend asked me recently what I think of as my worst quality. Interesting question – as qualities and habits are not the same thing. Much of what I would like to change about myself is the result of habitual behavior that has seldom worked in my favor, like procrastinating. Other things are the result of deeply rooted fears and insecurities; I’ve preemptively lashed out at people I love so they can’t hurt me first. I’d have to say that my “worst” quality is impatience, in all its many forms. I get impatient for results and do things too quickly and not quite carefully enough and this is how dishes break and ankles are sprained and overpriced items are bought. Intentional use of passive voice. I get impatient with people who don’t seem to know how to behave in public, like the woman sitting next to me at the theater last night who did not stop moving the entire time, ate what sounded like a full meal, and took her shoes off. And I get most profoundly impatient with the people I love who can’t see the wonderfulness in themselves that I see. I realize how “unfair” this is, and that it is projection, frustration with my own slow self-improvement, and so on, but the question was asked and this is my answer right now. RIGHT NOW! (see?)

It comes down to a mixture of things. One is that, as Vanessa and I discussed this weekend, I am on such a quest for self-betterment and so determined to conquer my demons, which will be a lifelong project, that I get frustrated when people complain and lament but don’t want to accept that there are solutions, that the vast majority of “problems” we have are, in fact, surmountable. My frustration stems very much from my need to believe that obstacles are temporary and that better things will surely come my way. And that I can manifest a life that is rich and abundant and more positive than negative. And so idle complaining from others, particularly of the cyclical variety, is difficult for me to tolerate. When a friend complains about his or her unhealthy habits and the toll it’s taking on his or her body, I want to be able to say, “You know what you need to do. I’ll help you and encourage you. Let’s start now.” But I recognize that people aren’t always ready to hear that. I know I’ve needed to lament about the states of various things for a while before I’ve been ready to take the necessary steps toward fixing them. It’s like quitting smoking (and in some cases is exactly that). We know it’s bad for us and that we need to quit, but knowing and feeling and implementing are three unique parts of the process. Kinder than sighing in frustration and snapping with impatience is embodying this quote, which I’ve used before:

I wish I could show you, when you are lonely or in darkness, the astonishing light of your own being.

Several people in my life are going through difficult times right now.Most of these times revolve around heartbreak and self-doubt. Self-doubt, I’m noticing, can segue into self-loathing, and there is no one in my world who deserves such treatment. Loving and accepting our own humanity, the wonderful and the horrible, allowing ourselves to learn from and let go of guilt and regret, and understanding that we don’t behave in a vacuum, that we are a sum of all of our parts and experiences and habits, these are the things that pave the way toward happier lives. Toward surviving the dark times and moving forward. Bad things will happen; this is an inescapable truth. The stronger we are, mentally and physically, the better equipped we will be to weather the unthinkable.

Now I must practice what I preach.

Hello there, my old friend

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Another one for you, dear L, on this most auspicious anniversary. Seven years ago you finally had enough of things as they were, of repeating mistakes, waking with regrets, issuing apologies, I imagine, for things you didn’t fully remember. How easy it is to continue in vain, to decide through indecision to fix it all later. But you are strong enough and smart enough to realize that later doesn’t always come, and that, even if it does, time better spent is what makes it worthwhile. You made a choice that is far from easy to execute, and one that so many of the people in our world avoid and rationalize until the choice is no longer theirs to make. Seven years ago you started over again,  and while I wasn’t there in the intervening years, I imagine it was, at times, grueling. I imagine it took everything you had and many things you didn’t know you had to adhere to your new way of life. The last time I saw you before this new beginning we’ve recently realized, we were all on the same spectrum, and so it must have been so, so easy to justify staying there; as I’ve written before, there’s comfort in the familiar, no matter how dark and destructive familiar might be.

But you stuck to it. My friend Roger says that he won’t know he’s succeeded in this same mission until his last day on earth. You, my dear, are inspiring, so inspiring to me. I am so appreciative that we’ve reconnected at this time in our lives, older and wiser and stronger and smarter and ready to take on the world. 

Thank you for being the amazing woman that you are, and for accepting me just as I am. 

Here’s to the rest of our beautiful lives. I’m so grateful to be part of yours. 

Love, L

Black dog

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The other day I spoke with an old friend who thinks he might be depressed and is ready to seek treatment. He came to me because I know my way around such matters; I have taken anti-depressants on and off for the past 20 years, and they have absolutely had a positive impact on my quality of life. I have also had to defend my use of them over the years, usually to people with no first-hand experience. There is no need to argue on their behalf; I agree that they are overprescribed, like just about every other prescription medication out there, and I know beyond a shadow of doubt that they work for me. “They” is a broad term – it takes a good doctor, a series of educated guesses, and some trial and error to find the right fit for an individual. As with other medications, one can build up a tolerance and this is when levels need to be adjusted or alternatives sought. 

One of the biggest misconceptions I’ve heard is that they turn you into an automaton, void of emotion. As anyone who knows me can avow, this could not be further from the truth. If properly prescribed they do not change your personality; for me, and many of my fellow travelers in depression, they clear the clouds or the cobwebs or insert-favorite-metaphor-here and make it possible to function. Yes, some of them have side effects, but not everyone suffers them and they can be tempered with other lifestyle changes. Just taking the medication is not enough; any good doctor is likely to prescribe them in conjunction with talk therapy. I happen to have found an amazing doctor, and he is a huge advocate of exercise as another way to supplement the positive effects of the pills. And though I was loathe to admit it for far too long, it makes an enormous difference. 

Winston Churchill described depression as “a visit from the black dog.” When one is well-versed in it, one can sense it looming, and this is the time to take action. Depression is very different from sadness. It is not a mood or an attitude, it is a chemical imbalance. It doesn’t matter what is going on around you, or how much you have going for you, or any of the things that well-intentioned people who’ve never grappled with it try to help you see. Bright sunny days are anathema; waking up in the morning feels like being punched anew in the stomach day after day. Depression physically hurts, and joy is an unattainable luxury. 

I have a lot more to say on this subject, much of which I wrote about here, some in the same language I’ve used above. I don’t have time to finish saying what I’d set out to, so I will continue this later. In the meantime, what I hope to impart is that anti-depressants are worth looking into if you or someone you know might be suffering from depression. Because they will only work if one does, in fact, have a chemical imbalance; there is absolutely no shame in treating what ails you and living a functional life. 

n.b. Because I happen to live with and love a black dog very much, I don’t share WC’s metaphor. Louie is the great elixir.